Sunnyhuckle sendinged mii dis. Shii wuzn’t shur if it shud b posted heer oar nawt. so I thottinged abowt it fur a whylez oar 3. Shii am nawt lukking fur sympathyz. Shii am wundering wut shii kin due tu getting deh Tr0ll’z biopsy analyzed tu see whai deh drugz nawt werking. If u haz enny ideaz plz tu leaving a comment heer fur hur. Fankeez. — mj
Ai haz sum tr0ll gnus. Am wonnerink ifn ennywon haz suggestions fur wut to do next? But, iz awl complicated and medical, ai haz studied and listened long wiles wif my hyper-sunny-drive brayne, but! Noze cheezpeeps an teapeeps izza smartest in the werld! And iz reely simple, at the heart of it, my doc needs a lab to test biopsy, Drug-maker has to have one, or how cud they make the drug? WILL NAWT SHARE!
Here’s the deal:
Tr0ll got pneumonia, blah blah blah.
Finally, he had invasive aspergilliosis in lungs and brayne.
Aspergilliosis NEVER GOES INTO THE BRAIN UNLESS THE PATIENT IS IMMUNO-SUPPRESSED! He is not!!! No AIDS, no organ transplant, nothing! The chances of this happening are like winning powerball elebenty weeks in a row!
Pfizer had the miracal drug fur this, tr0ll was put awn, we gets fur free. Called voriconazole. (normally is 5000 moneys a month, YAY Pfizer! And thank you!)
Lungs heal, awl lung fungus goes away.
Brayne does not. One month, MRI shows this, next month, his brain is different, the little lesions got big, the big ones got little, some old ones disappeared, new ones appeared.
Goes on and on like this! EVERY MONTH!
And…and…AND! His personality is constantly changing, wif the lesions! Nobody believes that part, they do not live with him!
Biopsy time. Now, docs in 3 states, at 3 universities, are lookin at my tr0ll’s brain sample, haz been presented at medical conference, blahblahblah.
Dna & rna extracted, compared, neurons, morons and protons explored.
Doc wants the biopsy tested to see if is resistant to voriconazole…or is blocked by the blood/brain barrier, that keeps boogers outa yur brain! cannawt find a lab to do! Was at the hospital 4 hours today, was there when the university in Texas, last hope, called and says, we know of no one who can test for resistance to this drug.
All the way home, sunny’s crazy brain is thinking, THERE IS SOME OTHER FACTOR AFFECTING THIS! SOMETHING NO ONE IS LOOKING FOR! I HAVE TO FIND FOR THEM! (too much Nancy Drew at young age?)
Normally, aspergilliosis + voriconazole = cured, unless yoo are immuno-suppressed. Why my tr0ll? Wut is different?
And, then! I call a friend to rant, and while venting, it occurred to me, Pfizer created this drug! Was a giant leap for treatment of fungus-kind! Miracle drug! YAY PFIZER!!
So, they must have labs to test for resistance to the drug, or how did they come up with it in the first place?
So, Ai cawls Pfizer. Customer service puts me through to a pharmacist hoo takes detailed notes awn hole thing! Awl 8 months. Iz very helpful, very interested, enthusiastic! Sunny haz the hopefuls! THEY WILL HALP! Talk over an hour!
Sunny gets bumped up a level…first guy was interested, enthusiastic, helpful. Transfers me up a rung awn the ladder. Then…apologizes? Huh? Transfers me …
Next Pfizer peep iz cold, machine-like, refers me to their website…go away, by-by now!
AWL AI WANT IZ TO FIND A PLACE FUR MY DOC TO TEST THE SPLORT-SAMPLE! Fur resistance to the drug! Somebody HAS TO HAVE ONE! Is this fungus resistant…izzit the blood-brayne barrier keeping the medicine outa his brain? TEST IT!!!
Any ideas? I finkso, (sunny heer admits, mebbee ai am rong, sigh!) Pfizer can do it, assured them I am greatful for their miracle drug, and for FREE! And said many pleezes and thank yous, and just, can my doc send a sample to YOUR labs?
And, awl of a sudden, this door slammed shut. Ai only wants the HALPS! Am ai crazier than ai thawt?
An…an…and! The worst part? Tr0ll is changing, ebery day, right before my eyes, and ai cannawt make him believe it, because he is changing!
OH. Ceiling Cat, sunny and her crazy crusades. He has yelled at me for an hour because I WANT SUMBODY TO DO SUMFING!!!
As ai left the room, he yelled, “yeah, go hide your head, TALK TO SUMWON YOO DOAN NOZE FUR A WHILE!”
Ai doan noze HIM.
Luv frum sunny